I am so thankful that the girls are here, and that I can see and touch them. I am so in love with them, and at the same time, it's just a new "hard". I cannot tell you how many times in this "pregnancy" I have said, "this is the hardest thing I have ever done", but I'm just sure it's true of the NICU. I miss them so much when I'm away, and I'm stressed by every alarm when I'm there. I hold back tears every time they get pricked, probed, or prodded. I hate that when they cry, I can't hold them to comfort them. It is so hard to trust the nurses with their care, and let go of control of my children over and over. I wonder if they will be ok, if we'll all make it. I'm learning how to cope with this, but have not figured it out yet, it's a different pain than anything I've known. Some days it agonizes me to look at my 2 pound, Evangeline. She is just SO small and looks more like a fetus than a baby. I HATE TTTS for what it did to my child. I know it was not my fault, but it pains me so much that my body was such a harmful place for her.
Objectively, the girls are doing well for their gestation. They have had a few hiccups; Audrey's IV blew and burned her little leg, & Evangeline has low heart rate drops that seem to last forever... But, mostly they are doing what is normal for 32 weekers. They continue to go up on feeds and are both still breathing on their own and off photo therapy for now. Audrey got her IV out, which Momma is so thankful for because it means no more chance for burns! Evangeline is weaning off her PICC line too. We are starting to work on breast feeding!
It is really hard for me to draw on the truth of the Gospel right now. I can barely utter the words, "Your will be done". But, it is true that Jesus has carried my family through each difficult stage of this pregnancy, and He continues to give us enough grace to get us through each day one at a time. I think the girls will make it though their NICU journey, not because they are fighters, but because Jesus is fighting for them.
Thank you for continuing to check in on us!