Deep breaths. Barely slept last night. This is happening. I find myself continually trying to ground myself in reality, "ok, we are Houston, in the medical center because I am a patient and I have a disease and 2 sick babies and I am getting surgery." so surreal.
We got in late last night. Ended up not being able to get out of town until after 5pm- as the night progressed, we drove further and further into the darkness and uncertainty. I have experienced all kinds of fear in my life, but never quite like this.
I begin a day of testing and evaluations today at 830am. If they decide that I need emergency surgery, they will do it today- if not I will have to wait until Thursday (they only do this surgery tuesdays and thursdays).
I am thankful to finally be here in good hands and get this show on the road. Ryan's mom is coming in today too, I'll be happy to see a familiar face (my mom got surgery recently too which is why she will not be able to come).
Alright, here goes nothin- its in Gods hands.
Thank you for checking on us!